Enhanced VolunteerOUR MISSION
The National PKU Alliance (NPKUA) is a vital voice for the PKU community. We work towards expanding PKU research and accelerating the timeline for a cure by investing in peer-reviewed and targeted research. We provide education and support to people living with PKU. We are the national voice for advocacy at the federal level – at the NIH, FDA and in the halls of Congress.
The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you. We are all connected to PKU.