Limited VolunteerThe Epidermolysis Bullosa Medical Research Foundation was established in 1991 by Gary & Lynn Fechser Anderson at the request of Dr. Eugene Bauer, then Professor and Chairman of the Department of Dermatology at The Stanford University School of Medicine. His research team was making exciting progress of their study of EB but needed additional funding to realize their goals . The Andersons lost two children, Chuck and Christine, to EB. Both children suffered deformities of the hands and feet, chronic anemia, malnutrition and growth retardation. Neither child ever weighed more than 84 pounds. The worst part of the disease was their constant pain. Towards the end of their lives, nearly 75% of their bodies were covered in open wounds. Relief came only when they were sedated to the point of sleep. Chuck died at age 27 of skin cancer, another side effect of the disease, and Christine died of heart failure at age 14.